Tuesday, February 6, 2018

Ballito (part 2)

On the Monday morning in Ballito I had to go for bloods, as my Dr switched me from Prograf to Advagraf the week before (Prograf levels suddenly went crazy high and my kidneys are struggling!!!, so we're trying this.). I went to Gateway Private Hosp in Umhlanga, as it's a transplant hospital (so they are more likely to know what "Tacrolimus" is), and met up with a few transplant friends. The weather wasn't great anyway, so no beach time missed. Verdict on the Advagraf levels... it was way too low and has been increased twice since then! Having it tested again tomorrow. My veins hate me.

On Tueday we went to an amazing beach - Thompson's Beach! The sea was way too rough to swim in, but there was an amazing tidal pool and the "Hole in the Wall".

On Wednesday we went to the nicest coffee shop in a small bit of indigenous forest that the owners have rehabilitated. Waterberry Cafe. You can take a walk in the forest and we saw a Blue Duiker! Very cool. We also went to The Litchi Orchard which is has some SUPER cute shops including a nursery. ended up buying 3 plants, some baby/children's clothes and one or two decor items for the lounge. On Thursday we drove back after an amazing 6 days! It was just what we needed after many months/years of medical drama and a much reduced quality of life. May there be many more such holidays!!!

Saturday, February 3, 2018

Ballito!!! (part 1)

Our Ballito holiday was amazing! Driving out of JHB was such a cool feeling :-) And nothing beats the first breath of sea air when you open the car door upon arrival!!! We arrived late afternoon so there was that misty sea haze and the sun was just about setting. Our accommodation was freaking amazing... RIGHT on the beach!! It's called Sea Cottages, and we would definitely highly recommend it! It's not like some of the other North Coast accommodation that is super commercialised and can't have a very "I'm at the beach" feeling. This felt like an old school beach house! We immediately went down and took it all in. Put my feet in the ocean.... had a walk, took pictures!!!

Saturday was our first beach day. We soon found out that swimming in the sea is a tricky business... this was not PE!!! The sea was SUPER rough and the slope of the beach pretty intense. In the end we swam mostly in tidal pools like some of the ones above, with some protection against the waves. And of course in our very awesome little pool in front of our cottage. The feeling of the sun on you after you come out of the sea felt like heaven. (yes I wore SPF50 all the time). It was never cold, even when raining... real sub-tropical weather. My hair hated it LOL.

We were actually planning this trip for October last year, when I was still waiting for lungs.Even though it's quite a drive from Joburg, my Dr had agreed that it would do both of us good to get away, as we hadn't had a proper holiday in AGES. I had already bought a new bikini and sunhat, and we were about to pay the deposit, when I got the call for lungs! In the rush to get ready for theatre we managed to cancel the booking! How much better it was now with the new breathers!!! Walking on the beach was a piece of cake lung-wise, although my calf muscles didn't think so. Swimming was a non-issue. Everything was SO EASY! Got a few stares as a result of looking like a bit of a voodoo doll with all my scars (18 scars from drains and my Nissen surgery on my tummy and lower ribs, plus the actual transplant scars, and a big cut down my groin where the ECMO was in during theatre), but it really doesn't bother me in the least.

Thursday, January 25, 2018

10 Years!!! (and Ballito)

On Monday it was a decade since my first transplant. What a strange feeling... I don't have the same attachment to the day that I used to, yet it's still very special. It was a big miracle moment in my life. And definitely one of the top 5 memorable days so far (and will always be... I can't see anything really taking it's place!). Lots of donor-family thoughts for both my donors happened. How do you thank someone for something like this??? On Tuesday marked 12 weeks with the new lungs!

To celebrate the sort-of lungaversary we had the family over for a braai on Sunday. On Saurday I also had the first swim with the new lungs! So many firsts happening in between remembering this week in 2008.

Tomorrow we're leaving to Ballito!!!! Yay!!!! First holiday in years! First holiday with the precious lungs! First time in Ballito! Finally getting out of JHB! Really hoping it goes well and there are no funny health niggles! Will have to have a blood test while there to check my Advagraf levels (I switched from Prograf to Advagraf yesterday due to unstable medication levels.) on Sunday. We get back on Thursday afternoon, and Friday it's a lot of Doctors and tests, but it will all be fine because I'll be relaxed and happy and breathing :-)